Pictured: Head of Brain Cancer Research at Chris O’Brien Lifehouse, Dr Kim Kaufman
In promising news for brain cancer research, our world-first patient database for brain cancer, GlioNET, has now launched and is ready to recruit its first participants.
Every 5 hours an Australian is diagnosed with brain cancer and is faced with a 20% chance of surviving the next 5 years. Glioblastoma, the same cancer Professor Chris O’Brien AO passed away from in 2009, is the most common and aggressive form.
The low survival rates for glioblastoma patients have barely changed in 30 years as a direct result of a lack of funding and research. While community awareness of brain cancer and its burden is growing, critical research is still hampered by the absence of materials to study.
GlioNET is the first concerted effort to track and observe patients over their entire journey with brain cancer, capturing a wealth of information and biospecimens for researchers to improve treatments, survival and services for patients and their carers.
“GlioNET will provide an invaluable platform for researchers worldwide to advance our understanding of glioma,” says Dr Kaufman, Head of Brain Cancer Research at Chris O’Brien Lifehouse and the lead scientist on this project. “We hope that GlioNET also empowers patients, by giving them an opportunity to contribute their information, samples and experiences of living with glioblastoma.
“I’m incredibly grateful to the donors who have enabled this project that will fast track investigations into brain cancer. They are giving hope to more than 1500 Australians diagnosed each year.”
You can support research like GlioNET by making a donation today via this newsletter or at donate.mylifehouse.org.au/openhouse.